The latest news from PTC

Now 23, Luke Hains was 8 years old when his younger brother, Levi, was diagnosed with Duchenne muscular dystrophy. Looking after his brother and helping with his daily activities was part of life, even during college. While in the midst of figuring out the trajectory of his career during college, Luke realized that he could…

It is fair to say that Jessica Fabus Cheng is a very impressive woman who carries many crowns and titles including surgical nurse, sportswoman, mother, Duchenne carrier and cancer survivor, and Mrs. New York International 2023. She is also a former figure skater and in 2021 was listed as one of Taekwondo Life Magazine’s ‘10…

Felix Wu was four when he was diagnosed with Duchenne muscular dystrophy. Throughout his school career, he saw how Duchenne affected him, and how inclusive (or not) people could be. “People with disabilities have to think about so much more when we plan anything, just in terms of access,” Felix said. “At school, for example,…

At 39 years old, there’s not much that Juan Morales hasn’t already achieved. Despite living with spinal muscular atrophy (SMA), a severe, genetic motoneuron disease causing muscle weakness and wasting, Juan’s own determination has led him to transform his life to find purpose. From writing an autobiographical book on personal development, advocating for people with muscular…

Australian-born Philip Højgaard-Olsen found his independence in his parental home of Denmark. Born in Sydney, Australia, Philip travelled to Denmark and decided to stay after gaining access to a care system that was not available in Australia at the time. A film crew followed his transition journey and even recorded a documentary. The documentary was…

Ethan Higginbotham’s passion for astronomy and physics is “out of this world.” His interest in all things outer space influenced him to pursue an internship with NASA, and one day, he hopes to broaden his astrophysics knowledge through completing a physics PhD. Ethan, who describes himself as determined and driven, shows that people living with…

Shalom Lim is living with Duchenne in Singapore. The sad loss of his brother to the condition and his experiences of neurodivergence as a disabled person has brought him adversity. However, now aged 27, he has learnt to view Duchenne as a companion and source of inner strength from his struggles. Following the loss of…

Powerchair Hockey is a team sport for people with physical disabilities who require a wheelchair to practice sport. The game is fast paced and intense…with two teams of five players battling against each other to score the most goals and win! The game prides itself on being very inclusive, with a team comprised of varying…

Claudia is a mother of two, caregiver, social media content creator and Duchenne advocate from the Dominican Republic, living in New York. Originally a lawyer by trade, Claudia spent a happy, but demanding, few years raising her family whilst simultaneously juggling work commitments. However, this all came to a sudden halt when Claudia noticed that…

Martin Stengård has many strings to his bow. Following his pursuit of music as a student and retraining in the software development industry, he is now working as a full-time cyber security specialist. Above all this, however, he is the proud father of Sigge, his 15-year-old son who is living with Duchenne muscular dystrophy. For…